By using this website, you agree that we may use any personal information you have given, in the manner stated below.
We may collect personally identifiable information, meaning any information relating to an identified or identifiable person, such as names, addresses, telephone numbers, email addresses only when voluntarily provided by you when you register or otherwise voluntarily submit information to us. Some of this information may relate to your health, which is particularly sensitive.
Swedish Orphan Biovitrum AB (publ) (“Sobi”), with registered offices at SE-112 76 Stockholm, Sweden, e-mail address
, will collect and process your information as controller of the database.
Legal basis for processing
We process your personal information when you have given your consent. If the consent concerns a child under the age of 16 (or such other lower age determined by the local laws where you live), consent must be given by an authorized person with parental responsibility for the child. We also process some personal information when it is necessary for the purposes of our legitimate interest in order to maintain and improve our website and to respond to requests for information and services.
Data submitted by you
You may visit our website without registering or submitting any personal information. However, you may be submitting personal information to us through contact forms or through a registration page. If you register or submit personal information, for example in order to receive e-mail updates, we will collect personal information that you have provided, such as your name, address, telephone number, e-mail address etc. when it is voluntarily submitted to us. It will be clearly indicated if and when we collect such information from you.
How we will use your personal data
By providing your personal information to us, you agree that, where it is permitted by local law, we may use the information:
- to respond to your questions or requests for information and communicate with you about the website
- to provide you with information that you have requested
- to improve our level of service
- to comply with local laws, for example reporting adverse event information
- to consider your application for employment
- for our own administrative and quality assurance purposes
- for other purposes that may be detailed on the website or mobile application or otherwise agreed between Sobi and you
We will not use your personal information for marketing activities unless you have provided explicit consent to receive marketing communications from us.
Transfer of data outside the EEA
Security of personal information
We take reasonable steps to protect your personal information from loss, misuse, unauthorized access, disclosure, alteration or destruction by using security precautions that provide for industry standard protection. However, no data transmission over the Internet can be guaranteed to be completely secure. As a result, to the extent permitted under applicable law, we make no warranty, express or implied, concerning the security or integrity of any personal information.
Retention and erasure of personal information
Information regarding your rights
You will at any time have the right to access your personal information, to have it rectified, erased or to transfer it to other organizations at your request. You also have the right to object or to restrict some processing and, where we have asked for your consent to process your personal information, to withdraw your consent at any time. If you withdraw your consent, we will stop any future use of your personal information (however, if you have given your consent to using your personal information in publications, for example educational or marketing materials, personal data may continue to appear for some time in any publications already in circulation).
If you have any questions, requests or complaints about how we process your personal information, simply write to us using the email address:
If you have any comments or complaints regarding the way your personal data is being handled, you have the right to contact the supervisory authority in Sweden (Swedish: Datainspektionen, see this link) or in the country where you live, to lodge a complaint.
Links to other sites